MITOCHONDRIAL DISEASE AWARENESS WEEK: SEPTEMBER 14 - 20, 2014
In children, mitochondrial disease is more common than cancer and muscular dystrophy, combined.
Despite this few physicians recognize or fully understand mitochondrial disease! Treatments, appropriate medical care and support services are extremely limited!
TOGETHER, as a unified MITO Community,
WE CAN MAKE A DIFFERENCE!
Thanks for visiting!
MITO HOPE and HELP is a non profit 501(c) 3 program, sponsored by NYSARC Inc., Warren Washington and Albany Counties Chapter, www.wwaarc.org
As a unified MITO community, we are dedicated to raising much needed awareness of Mitochondrial diseases.
We passionately strive to represent, unite and offer support to hundreds of
individuals and their families living with, or who have lost loved
ones to, mitochondrial diseases throughout Northeastern NY. Most importantly, MITO HOPE and HELP
wants our local MITO community to know that they are not alone! We
care, understand and acknowledge what EVERYONE is dealing with!
HOPE and HELP is also committed to funding local appropriate medical
care and support services for MITO patients of all ages! Individuals
living with Mitochondrial diseases require specialized, coordinated care
administered by trained professionals. The medical community
acknowledges the lack of appropriate medical care and services for these
poorly understood, complex, chronic and incurable diseases. This void
can be significantly filled by funding a nurse practitioner to
work under the direction of Dr. Darius Adams and Dr. Natasha Shur,
geneticists at Albany Medical Center.
Hope and Help has established an endowment fund with Albany Medical
Center specifically for this purpose. Your donations are greatly
appreciated! We must raise $306,000.00 to reach our goal which includes
3 years salary, benefits and vehicle expenses to fund the position.
addition, MITO HOPE and HELP networks with
organizations, institutions and support resources to disseminate
pertinent information to individuals and their families living with
Mitochondrial diseases throughout our Northeastern NY communities.
any of you would like for MITO HOPE and HELP to speak at your church /
house of worship or for any other group please contact me at,
TOGETHER, we can make a difference!
This website is dedicated to everyone suffering with a Mitochondrial disease and their families, as well as those who have lost their lives to these devastating diseases.
No, you're not seeing double! Tyler and Jordan, twin brothers, are helping raise awareness of MITO by wearing T-shirts their mom, Taryn, made. We can ALL help spread the word about MITO and educate our communities in numerous ways everyday!!!
YOU can HELP TYLER AND JORDAN boost HOPE for all individuals living with Mitochondrial Disease, while also supporting
MITO HOPE and HELP.
YOU can purchase the t-shirt shown by clicking on this
REMEMBER: MITOCHONDRIAL DISEASE AWARENESS WEEK IS SEPTEMBER 14 - 20, 2014
MITO awareness T-Shirts are a GREAT way of raising awareness everyday!
THANK YOU JORDAN AND TYLER FOR SUPPORTING MITO HOPE AND HELP!!!
Today is a very important day for our ENTIRE MITO COMMUNITY
no matter where you live!
Below is a link to the first ever WORLDWIDE Mitochondrial Disease Patient Registry.
You are encouraged to visit the site and share your information.
It is our MITO Communities best unified effort and chance for improving care, developing new treatments and someday finding a cure for MITO!
WELCOME HOME JUSTINA!!!!!!!!!!!!
You can find more articles on Justina by visiting our NEWS page.
WE LOVE YOU, CHERYL CLOW RN!!!!
Albany Medical Center’s Employee of the Year for 2013!
It is with great pleasure that I am able to share a
piece of news with you today regarding Cheryl Clow, RN in Genetics.
Cheryl Clow was recognized today by James Barba , CEO of Albany Medical
Albany Medical Center’s Employee of the Year for 2013!
To receive Employee of the Year is a tremendous
commendation which recognizes the gifts that Cheryl brings to the
department as an employee and individual on a daily basis. Cheryl was
not only nominated for this award by her colleagues
but by patients and families that she has worked with over the years
that she has been at Albany Medical Center.
Cheryl’s commitment to patient and customer service
and ability to provide care in a manner that embodies the spirit of
Albany Medical Center were outlined in the letters that the committee
received. She was chosen from a pool of candidates
that included the hospital, the college, and the center. The many
strengths that Cheryl brings to her exchanges with patients and
unwavering commitment to best care sealed the nomination .
HERE'S A WAY YOU CAN SUPPORT MITO HOPE AND HELP WHICH IS TOTALLY FREE AND EASY!
MITO HOPE and HELP has partnered with TD Bank through their Affinity Membership Program. Yearly TD Bank will issue MITO HOPE and HELP a donation based upon the supporters' balances in their TD Bank accounts.
If you're a TD Bank customer please take a few minutes and either call or visit your local TD Bank branch. Simply say, "I'd like to support MITO HOPE and HELP through TD Bank's Affinity Membership Program". Its that easy! There's NO paperwork involved, NO hassles, NO gimmicks, guaranteed! This is so easy and there is no cost, so why not?
Nothing is deducted from the supporters' account and its totally confidential between the supporter and TD Bank. Simply this is the universal means by which TD Bank has chosen to give back to the communities it serves. The easiest way is to call Marcella Towers, VP of the Warrensburg branch, at 518-623-2991.
If you're not already a customer, please consider becoming a TD Bank customer so you too can help support Mito Hope and Help!
Please ask family, friends and co-workers to help support MITO HOPE and HELP as well. TD Bank customers in other states can be enlisted also.
MITO HOPE and HELP was able to obtain the minimum 50 supporters needed, to qualify for this wonderful opportunity and a minimum yearly donation from TD Bank! However, the yearly donation amount is limitless! So please, help us continue this ongoing effort to support MITO HOPE and HELP!!!
VP. Store Manager Warrensburg,
TD Bank, America's Most Convenient Bank,
3852 Main Street,
Telephone - 518-623-2991
THANK YOU TD BANK and ALL of our Supporters, who are TD Bank Customers!!!!!!!!!!!!!!!!!
MITO HOPE and HELP was presented July 2014, with our Affinity Membership Donation from TD Bank in the amount of $824.40!!!!!!!!!!!!!!!!!!!!
We hope to see you again! Check back later for new
updates to our website. There's much more to come!
Mito Hope and Help has a facebook page!