MITO HOPE and HELP - Reaching out to individuals living with Mitochondrial Diseases


Thanks for visiting!

MEET RILEY


Riley is a local 10 year old boy who loves baseball and much more, despite MITO....

http://wnyt.com/news/westland-hills-baseball-coach-of-the-year-award--/4520516/?cat=10114


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MITO HOPE and HELP's awareness video, "THIS IS MITO" will be shown at the upcoming RARE DISEASE FILM FESTIVAL October3, 2017 in Boston.

The Rare Disease Film Festival is a new one day event showcasing films from around the world which address the challenges of life with a rare disease. Most (but not all) of our films are documentaries. Many are less than 20 minutes. The 2017 festival takes place in Boston. Boston is one of the cities on the leading edge of genetic research.
Each film maker attending will have an opportunity for questions and answers with our audience following the presentation of their film.
Between our slates of films rare disease researchers and patient advocates will also share stories from their experience.
We believe increased awareness can connect patient families, lead to more research and save lives. These films put the often abstract and dire clinical information into the context of real people living their lives.

"THIS IS MITO"

A film trailer preview of the full length documentary that is in the works!


You can view it by clicking on the link below.









Mr. Jon Dorflinger, founder and CEO of the Saratoga Film Academy, created this film trailer for our MITO Community. 
"THIS IS MITO" debuted October 30th at MITO HOPE and HELP's 4th Annual Mitochondrial Disease Symposium.  
We are happy to be able to share this powerful and informative film trailer with all of you!

I would like to thank Jon and all of the participants who volunteered to be part of this TREMENDOUS effort!



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MITO HOPE and HELP is a non profit 501(c) 3 program, sponsored by NYSARC Inc., Warren Washington and Albany Counties Chapter, www.wwaarc.org

As a unified MITO community, we are dedicated to raising much needed awareness of Mitochondrial diseases. 

We passionately strive to represent, unite and offer support to hundreds of individuals and their families living with, or who have lost loved ones to, mitochondrial diseases throughout New York.   Most importantly, MITO HOPE and HELP wants our local MITO community to know that they are not alone!   We care, understand and acknowledge what EVERYONE is dealing with!

MITO HOPE and HELP is also committed to funding local appropriate medical care and support services for MITO patients of all ages in the surrounding 26 counties!   Individuals living with Mitochondrial diseases require specialized, coordinated care administered by trained professionals.  The medical community acknowledges the lack of appropriate medical care and services for these poorly understood, complex, chronic and incurable diseases.  

MITO HOPE and HELP believes this void can be significantly filled by funding a MITO Liaison Program; consisting of trained MITO healthcare professionals.   An NP, RN and physician, would all work under the direction of Dr. Darius Adams. Mito Hope and Help continues to diligently try to obtain funding for our MITO Liaison Program.   We hope to be able to offer these crucial services in the near future. 

In addition, MITO HOPE and HELP networks with organizations, institutions and support resources to disseminate pertinent information to individuals and their families living with Mitochondrial diseases throughout our Northeastern NY communities and beyond.
 
If any of you would like for MITO HOPE and HELP to speak at your church / house of worship or for any other group please contact me at, founder@mitohopeandhelp.com.
 
 
TOGETHER, we can make a difference! 
 
 
This website is dedicated to everyone suffering with a Mitochondrial disease and their families, as well as those who have lost their lives to these devastating diseases.

 



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THERE'S A WAY YOU CAN SUPPORT MITO HOPE AND HELP WHICH IS TOTALLY FREE AND EASY! 

MITO HOPE and HELP has partnered with TD Bank through their Affinity Membership Program.   Yearly TD Bank will issue MITO HOPE and HELP a donation based upon the supporters' balances in their TD Bank accounts.  
If you're a TD Bank customer please take a few minutes and call 518-623-2666.  Simply say, "I'd like to support MITO HOPE and HELP through TD Bank's Affinity Membership Program".   Its that easy!  There's NO paperwork involved, NO hassles, NO gimmicks, guaranteed! This is so easy and there is no cost, so why not?

Nothing is deducted from the supporters' account and its totally confidential between the supporter and TD Bank.  Simply this is the universal means by which TD Bank has chosen to give back to the communities it serves. The easiest way is to call the Branch manager of the Warrensburg location, at 518-623-2991.
 
If you're not already a customer, please consider becoming a TD Bank customer so you too can help support Mito Hope and Help! 

Please ask family, friends and co-workers to help support MITO HOPE and HELP as well. TD Bank customers in other states can be enlisted also. 

MITO HOPE and HELP was able to obtain the minimum 50 supporters needed, to qualify for this wonderful opportunity and a minimum yearly donation from TD Bank!  However, the yearly donation is only possible if we continue to grow our number of supporters every year.  So please, help us continue this ongoing effort to support MITO HOPE and HELP!!!
 


TD Bank, America's Most Convenient Bank,
3852 Main Street,
Warrensburg.
NY 12885
Telephone - 518-623-2991
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We hope to see you again!  Check back later for new
updates to our website. There's much more to come!
 
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   Mito Hope and Help has a facebook page!