MITO HOPE and HELP - Reaching out to individuals living with Mitochondrial Diseases


Thanks for visiting!

MITO HOPE and HELP is a non profit 501(c) 3 program, sponsored by NYSARC Inc., Warren Washington and Albany Counties Chapter, www.wwaarc.org

As a unified MITO community, we are dedicated to raising much needed awareness of Mitochondrial diseases. 

We passionately strive to represent, unite and offer support to hundreds of individuals and their families living with, or who have lost loved ones to, mitochondrial diseases throughout Northeastern NY.   Most importantly, MITO HOPE and HELP wants our local MITO community to know that they are not alone!   We care, understand and acknowledge what EVERYONE is dealing with!

MITO HOPE and HELP is also committed to funding local appropriate medical care and support services for MITO patients of all ages!    Individuals living with Mitochondrial diseases require specialized, coordinated care administered by trained professionals.  The medical community acknowledges the lack of appropriate medical care and services for these poorly understood, complex, chronic and incurable diseases.  This void can be significantly filled by funding a nurse practitioner to work under the direction of Dr. Darius Adams and Dr. Natasha Shur, geneticists at Albany Medical Center.
 
Mito Hope and Help has established an endowment fund with Albany Medical Center specifically for this purpose.  Your donations are greatly appreciated!  We must raise $306,000.00 to reach our goal which includes 3 years salary, benefits and vehicle expenses to fund the position.

In addition, MITO HOPE and HELP networks with organizations, institutions and support resources to disseminate pertinent information to individuals and their families living with Mitochondrial diseases throughout our Northeastern NY communities.
 
If any of you would like for MITO HOPE and HELP to speak at your church / house of worship or for any other group please contact me at, founder@mitohopeandhelp.com.
 
 
TOGETHER, we can make a difference! 
 
 
This website is dedicated to everyone suffering with a Mitochondrial disease and their families, as well as those who have lost their lives to these devastating diseases.

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GO GREEN FOR MITO!



Naturally Green Products has partnered with us to offer a 10% give back to
MITO Hope and Help when you purchase any of their green non-toxic products.   
Naturally Green Products is a "Made in the USA" women owned company that creates, formulates and bottles green cleaning products for the home and office. The products are very effective and safe for you, your family and the environment. They are certified by the EPA and/or the USDA. Choose from individual products such as: Granite & Tile cleaner, Stainless Steel cleaner, Toilet bowl cleaner, and their flagship product "No More Bugs!" which is 100% USDA Bio Preferred certified or save more when purchasing a "Green Kit" such as: My Green Kitchen and My Green Home!



 Use Code MITO10 at checkout!















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No, you're not seeing double!  Tyler and Jordan, twin brothers, are helping raise awareness of MITO by wearing T-shirts their mom, Taryn, made.   We can ALL help spread the word about MITO and educate our communities in numerous ways everyday!!!





YOU can HELP TYLER AND JORDAN boost HOPE for all individuals living with Mitochondrial Disease, while also supporting
MITO HOPE and HELP.

You can still purchase a MITO Awareness T-Shirt by visiting our PRODUCTS page!


MITO awareness T-Shirts are a GREAT way of raising awareness everyday!

THANK YOU JORDAN AND TYLER FOR SUPPORTING MITO HOPE AND HELP!!!





Watch Mitochondrial Disease on PBS. See more from Health Link.







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8/18/14

Today is a very important day for our ENTIRE MITO COMMUNITY
no matter where you live!

Below is a link to the first ever WORLDWIDE Mitochondrial Disease Patient Registry.

You are encouraged to visit the site and share your information. 
It is our MITO Communities best unified effort and chance for improving care, developing new treatments and someday finding a cure for MITO!



In children, mitochondrial disease is more common than cancer and muscular dystrophy, combined.

Despite this few physicians recognize or fully understand mitochondrial disease!  Treatments, appropriate medical care and support services are extremely limited! 

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You need Flash Player in order to view this.
THE MANY FACES OF MITO
MITO awareness slide show for symposium and website













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WE LOVE YOU, CHERYL CLOW RN!!!!
Albany Medical Center’s Employee of the Year for 2013!







It is with great pleasure that I am able to share a piece of news with you today regarding Cheryl Clow, RN in Genetics.  Cheryl Clow was recognized today by James Barba , CEO of Albany Medical Center as Albany Medical Center’s Employee of the Year for 2013!

 

To receive Employee of the Year is a tremendous commendation which recognizes the gifts that Cheryl brings to the department as an employee and individual on a daily basis.  Cheryl was not only nominated for this award by her colleagues but by patients and families that she has worked with over the years that she has been at Albany Medical Center.

 

Cheryl’s commitment to patient and customer service and ability to provide care in a manner that embodies the spirit of Albany Medical Center were outlined in the letters that the committee received. She was chosen from a pool of candidates that included the hospital, the college, and the center.  The many strengths that Cheryl brings to her exchanges with patients and unwavering commitment to best care sealed the nomination .
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HERE'S A WAY YOU CAN SUPPORT MITO HOPE AND HELP WHICH IS TOTALLY FREE AND EASY! 
 
MITO HOPE and HELP has partnered with TD Bank through their Affinity Membership Program.   Yearly TD Bank will issue MITO HOPE and HELP a donation based upon the supporters' balances in their TD Bank accounts.  
If you're a TD Bank customer please take a few minutes and either call or visit your local TD Bank branch.  Simply say, "I'd like to support MITO HOPE and HELP through TD Bank's Affinity Membership Program".   Its that easy!  There's NO paperwork involved, NO hassles, NO gimmicks, guaranteed! This is so easy and there is no cost, so why not?

Nothing is deducted from the supporters' account and its totally confidential between the supporter and TD Bank.  Simply this is the universal means by which TD Bank has chosen to give back to the communities it serves. The easiest way is to call Marcella Towers, VP of the Warrensburg branch, at 518-623-2991.
 
If you're not already a customer, please consider becoming a TD Bank customer so you too can help support Mito Hope and Help! 

Please ask family, friends and co-workers to help support MITO HOPE and HELP as well. TD Bank customers in other states can be enlisted also.

MITO HOPE and HELP was able to obtain the minimum 50 supporters needed, to qualify for this wonderful opportunity and a minimum yearly donation from TD Bank!  However, the yearly donation amount is limitless! So please, help us continue this ongoing effort to support MITO HOPE and HELP!!!
 

VP. Store Manager Warrensburg,
TD Bank, America's Most Convenient Bank,
3852 Main Street,
Warrensburg.
NY 12885
Telephone - 518-623-2991




THANK YOU TD BANK and ALL of our Supporters, who are TD Bank Customers!!!!!!!!!!!!!!!!!
MITO HOPE and HELP was presented July 2014, with our Affinity Membership Donation from TD Bank in the amount of $824.40!!!!!!!!!!!!!!!!!!!!

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We hope to see you again!  Check back later for new
updates to our website. There's much more to come!
 
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   Mito Hope and Help has a facebook page!