Thanks for visiting!
5th Annual MITO Family Fun Day at the Great Escape, June 12th 2016
HERE IT IS!
"THIS IS MITO"
A film trailer preview of the full length documentary that is in the works!
You can view it by clicking on this link
Mr. Jon Dorflinger, founder and CEO of the Saratoga Film Academy, created this film trailer for our MITO Community.
"THIS IS MITO" debuted October 30th at MITO HOPE and HELP's 4th Annual Mitochondrial Disease Symposium.
We are happy to be able to share this powerful and informative film trailer with all of you!
I would like to thank Jon and all of the participants who volunteered to be part of this TREMENDOUS effort!
CALL TO ACTION!
We've kicked off our 2016 New York State Legislative efforts and we need
Below are a number of ways you can get involved
Please send me your MITO stories. We want legislators to know what it is like to live with MITO. Describe your struggles associated with with this disease; insurance company denials, financial issues, lack of appropriate medical care and support services, etc. Although our current proposed NY State MITO legislation only addresses the MITO cocktail it's important the we educate those who have it within their power to help us. These efforts will lead to futher assistance and services but only if you get involved and make your voice heard!
New York State MITO Community;
We also need for YOU, your family members, friends, co-workers and supporters to continue to contact your New York State legislators today!
Please ask them to support proposed MITO legislation:
Senate Bill S3250A and A5174A in the Assembly!
The link below will take you to an updated NY State governmental website, which will provide you with the ability to follow the progress of our efforts, find your legislators contact info. , view the complete language of our proposed MITO legislation and so much more.
The most effective means is to send them a letter via regular mail.
UMDF has graciously offered to join our local efforts.
By visiting UMDF's link below, you'll find a very simple and quick way of contacting your legislator to enlist their support.
THANK YOU UMDF!
Thank you Senator Betty Little and
Assemblyman John McDonald,
the primary sponsors of
our MITO legislation.
Please also visit our Legislative Support Page for a list of legislators and those in the MITO Community, who are supporting our efforts!
MITO HOPE and HELP is also spearheading efforts to add mitochondrial disease to the list of qualifying conditions for medical marijuana use in NY State
The Genetic Metabolic Center for Education is open!
There is a NEW and REVOLUTIONARY resource available, which will forever change the way metabolic diseases are diagnosed and managed, providing much improved care for all who utilize their services.
will bring you to the Genetic Metabolic Center for Education.
You can also view a video describing GMCE's services by clicking on the link below:
MITO HOPE and HELP is a non profit 501(c) 3 program, sponsored by NYSARC Inc., Warren Washington and Albany Counties Chapter, www.wwaarc.org
As a unified MITO community, we are dedicated to raising much needed awareness of Mitochondrial diseases.
We passionately strive to represent, unite and offer support to hundreds of
individuals and their families living with, or who have lost loved
ones to, mitochondrial diseases throughout New York. Most importantly, MITO HOPE and HELP
wants our local MITO community to know that they are not alone! We
care, understand and acknowledge what EVERYONE is dealing with!
HOPE and HELP is also committed to funding local appropriate medical
care and support services for MITO patients of all ages in the surrounding 26 counties! Individuals
living with Mitochondrial diseases require specialized, coordinated care
administered by trained professionals. The medical community
acknowledges the lack of appropriate medical care and services for these
poorly understood, complex, chronic and incurable diseases.
MITO HOPE and HELP believes this void
can be significantly filled by funding a MITO Liaison Program; consisting of trained MITO healthcare professionals. An NP, RN and physician, would all work under the direction of Dr. Darius Adams. Mito
Hope and Help continues to diligently try to obtain funding for our MITO Liaison Program. We hope to be able to offer these crucial services in the next several months.
addition, MITO HOPE and HELP networks with
organizations, institutions and support resources to disseminate
pertinent information to individuals and their families living with
Mitochondrial diseases throughout our Northeastern NY communities and beyond.
any of you would like for MITO HOPE and HELP to speak at your church /
house of worship or for any other group please contact me at,
TOGETHER, we can make a difference!
This website is dedicated to everyone suffering with a Mitochondrial disease and their families, as well as those who have lost their lives to these devastating diseases.
HERE'S A WAY YOU CAN SUPPORT MITO HOPE AND HELP WHICH IS TOTALLY FREE AND EASY!
MITO HOPE and HELP has partnered with TD Bank through their Affinity Membership Program. Yearly TD Bank will issue MITO HOPE and HELP a donation based upon the supporters' balances in their TD Bank accounts.
If you're a TD Bank customer please take a few minutes and either call or visit your local TD Bank branch. Simply say, "I'd like to support MITO HOPE and HELP through TD Bank's Affinity Membership Program". Its that easy! There's NO paperwork involved, NO hassles, NO gimmicks, guaranteed! This is so easy and there is no cost, so why not?
Nothing is deducted from the supporters' account and its totally confidential between the supporter and TD Bank. Simply this is the universal means by which TD Bank has chosen to give back to the communities it serves. The easiest way is to call the Branch manager of the Warrensburg location, at 518-623-2991.
If you're not already a customer, please consider becoming a TD Bank customer so you too can help support Mito Hope and Help!
Please ask family, friends and co-workers to help support MITO HOPE and HELP as well. TD Bank customers in other states can be enlisted also.
MITO HOPE and HELP was able to obtain the minimum 50 supporters needed, to qualify for this wonderful opportunity and a minimum yearly donation from TD Bank! However, the yearly donation is only possible if we continue to grow our number of supporters every year. So please, help us continue this ongoing effort to support MITO HOPE and HELP!!!
VP. Store Manager Warrensburg,
TD Bank, America's Most Convenient Bank,
3852 Main Street,
Telephone - 518-623-2991
We hope to see you again! Check back later for new
updates to our website. There's much more to come!
Mito Hope and Help has a facebook page!